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Fear and Loathing in My Brain
After my little adventure a week and a half ago, I’m feeling a greater level of fear than I have in a while. I didn’t skip any of my medicine, I was feeling pretty great, celebrating a good MRI and yet...
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Take A Risk And Live Truly
Death is not the biggest fear we have; our biggest fear is taking the risk to be alive – the risk to be alive and express what we really are. – Miguel Ruiz What risks are you going to take today? What...
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Real or Imagined?
The average survival rate of someone with a GBM IV is 12 – 18 months. The standard of care (surgery, temodar (chemo), and radiation) helps most patients get close to that average or with any luck...
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Life With a Chronic Illness
I saw this video and felt I needed to share it. Morgan articulates what its like to live with a chronic illness in a way that illustrates the struggle, the loss, the prejudice, the heartbreak, the...
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Confession
When you find out you have a GBM, it’s a terrifying and lonely experience. Some may seek other patients through support groups. Some find others through various online sources – Twitter, Facebook, etc....
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